– Total Number of Volunteer: 600+
– Total Number of Active Citizen: 150+
– Total Number of Non-Active Citizens: 450+
– Total Facilitator: 70
– Working Area: 10 District
– Name of District: Dhaka, Comilla, Narayanganj, Gazipur, Barisal, Pabna, Rangpur, Chittagong, Rajshahi, Mymensingh.
– Number of Event: 600+
– Category of Event: Seminar, Workshop, Thalassaemia Awareness Campaign, Carrier Detection Test Program, Round Table, Patients & Parents Conference, Facilitator Training, Road Show Rally, Technical Conference, Signature Campaign, International Conference etc
– Number of Media Coverage: 350+
Project Managed by: Arefin Rahman Himel and Project Coordinated by Sanzida Zaman Liza.
Thalassemia, a group of genetic blood disorders, poses a significant health challenge in Bangladesh, with over 10% of the population being carriers of Thalassemia and HB-E traits. Since 2014, the Youth Club of Bangladesh (YCB) has been diligently working in collaboration with the Bangladesh Thalassaemia Samity and Hospital to raise awareness about this pressing issue. The flagship project, “Let’s Fight Against Thalassaemia,” stands as a testament to their commitment.
In Bangladesh, there exists a lack of awareness among the younger generation regarding Thalassemia, despite its critical implications. One of the primary modes of transmission is through carriers who are unaware of their genetic status before marriage. This lack of knowledge has contributed to a notable prevalence of Thalassemia, making it the most common genetic disorder in the country and globally. Recent research indicates that approximately 10-12% of the population carries Thalassemia and HB-E traits. Shockingly, more than 15,000 children are born with Thalassemia each year, signifying an escalating patient rate. While there is no definitive cure for Thalassemia, prevention through awareness and carrier testing emerges as a powerful strategy. Recognizing this, the Youth Club of Bangladesh initiated the “Let’s Fight Against Thalassaemia” campaign to illuminate the gravity of this health concern.
Over the years, the project has spanned across 10 districts of the country, employing a diverse range of awareness-building techniques. Seminars, road shows, conferences, awareness campaigns, radio shows, and television broadcasts have been strategically organized to disseminate crucial information. This multi-faceted approach ensures that the message reaches a wide audience, instigating informed decision-making and catalyzing change.
However, the journey has not been without challenges. Early on, the project faced the scarcity of like-minded organizations, a dearth of specialized medical facilities, and a lack of government inclination to address this critical health concern. In a significant breakthrough, the project partnered with the Bangladesh Thalassaemia Samity and Hospital, synergizing efforts to amplify their impact. The collaboration has not only fortified the initiative but has also prompted the government and similar organizations to recognize the urgency of addressing Thalassemia comprehensively. The “Let’s Fight Against Thalassaemia” initiative, spearheaded by the Youth Club of Bangladesh in partnership with the Bangladesh Thalassaemia Samity and Hospital, stands as a beacon of awareness and action. By sensitizing the youth and the broader population about the significance of carrier testing and early intervention, the project endeavors to curb the prevalence of Thalassemia. The journey from 2014 to 2023, spanning multiple districts and encompassing various awareness-building strategies, underscores the dedication of these organizations to tackle this pressing health issue.
Thalassaemia Free Bangladesh.
– To create awareness about Thalassaemia among Young People.
– To engage youth in our Thalassaemia Movement.
– To engage young people for Blood Donation for Thalassaemia Patient.
– To develop counseling support for Thalassaemia Carrier
– 378 Seminar and Workshops & Awareness Campaign
– 80,000 Student Attend on Seminar and Workshops & Awareness Campaign
– 128 Free carrier detection test
– 8600 Students got free carrier detection test
– 09 Special Events
– 1700+ Patients, Parents, Doctors attend Conference & Symposium
– 24 Blood Donation Camp
– 658 Bags Blood Collected, 2500 Donor Data Base
– 11 Technical Session
– 70 Volunteer & 250 Doctors Specially attend Technical Session & Seminar
We would like to thank all of our partners and well-wishers like British Council, Bangladesh Thalassaemia Samity and Hospitals, The Hunger Project Bangladesh, CMUD, Democracy Watch, Wave Foundation Bangladesh, CRDs, Bangladesh Bank, Novartis, DNA Solution, DGHS and Dhaka shishu Hospitals and others. We would like to express our special gratitude to British Council Bangladesh for giving us this inspiration to work for our community, turning us to a social warrior.